May is EDS and HSD Awareness Month—Let’s Raise $100K for Change!

Ten Years of Impact. One Powerful Month to Go Further.

May is EDS and HSD Awareness Month, and every year, the global Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) community joins together to raise awareness and move the progress forward.

But this year, it is more than just awareness. It is celebrating, storytelling, and taking action.

In 2026, we mark ten years of making a significant difference in the world, thanks to people like you. From lighting up landmarks to sharing your stories, walking and rolling in your communities, and raising critical dollars for research and treatment, you’ve made what’s possible a reality.

We invite you to join us in May to raise awareness and funds for a future in which diagnosis happens sooner, care is coordinated, and everyone is believed.

Together, we’ve changed lives. Let’s keep going.