We did it!

Our campaign is now complete. 77 supporters helped us raise £39,288.63

Closed 1/31/2020

0

%

£39,288.63

raised of
£85,000
target by 77 supporters
The Bradley Lowery Foundation

Future for Maddi

Maddi is fundraising for an SDR operation in the USA. The operation will improve Maddi's mobility, this will make a huge difference to her life,
Closed on 01/31/2020
Charity Registration No: 1174333

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Story

We are fundraising to help get Maddi to St Louis Children's Hospital in America to have a life changing surgery called Selective Dorsal Rhizotomy (SDR).

Maddi is now 17 years old and was diagnosed over 2 years ago with SPG15 (Hereditary Spastic Paraplegia 15). Its a very rare and life limiting disease and at present Maddi is the only one in the U.K. that we know of. The disease causes paralysis of the limbs as-well as additional neurological symptoms that can affect the eyes, along with Parkinson's and other brain abnormalities. So far Maddi is still trying to keep up her strength with PT but she can only walk a short distance before exhaustion and pain takes over and her balance has become seriously affected which causes her to fall over.

In the last year now we have been fundraising to help raise money to support Gene Therapy research for SPG15. Work is still ongoing for this therapy in hope of one day it will halt the disease, however, this research takes time and we know there will be too more damage caused to Maddi before it will happen.

The surgical procedure called Selective Dorsal Rhizotomy (SDR) is to try and give Maddi some quality of life and to hopefully keep her walking for a while longer.

SDR is not available in the UK for Maddi's disease, but the world leading specialist Dr Park at St Louis Children's Hospital has already treated other patients with Hereditary Spastic Paraplegia successfully and so many CP children with some fantastic results, he has suggested this would be a good option for Maddi.

SDR is a permanent life changing surgery, it takes away almost all of the spasticity. It would prevent bone deformities and contracture that can happen due to spasticity and weakness and improve function. This should then take away the pain and the stiffness that SPG15 causes.

We as a family would really need some support to help raise funds in getting Maddi to St. Louis.

THANK YOU.

Terms of donations - 100% of cash donations to this cause are held as restricted funds for this campaign, and held in a bank account named after the child. All funds will be held for this cause until they use the funds for the intended purpose, or funds are no longer needed.

*UPDATE*

Maddi's operation is now booked and paid for! (Total operation cost £37,786.22)

HUGE thank you to Caudwell children who donated £5000 to maddi's fund. £22,169 of the funds paid was self funded from Maddi's family and £10,617.22 fund raised by you!

Photos

2

Fundraisers

7

user

fiona dutton

£580.95

raised by 40 supporters

0%
user

Sydney Welsh

£360.00

raised by 27 supporters

0%
user

Stephen Allan

£265.00

raised by 15 supporters

0%
user

Madeleine Thurgood

£235.86

raised by 6 supporters

0%
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Lee Hillman

£160.00

raised by 9 supporters

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Supporters

70

Anonymous

4 months ago

Wishing you all the best and sending love

£20.00

+ £5 Gift Aid

Paul Johnson

4 months ago

Maddi sending you loads of love and wishing you a speedy recovery, very very brave girl ❤️

£20.00

+ £5 Gift Aid

Hayley Fennell

5 months ago

To my favourite gym buddy. Nobody is more deserving than you.xx

£50.00

+ £12.5 Gift Aid

user

Hayley Smith

5 months ago

So pleased to hear that you are able to go to America for your treatment. Here’s something to support your Physio fund Hayley, Dave and Sophie xxx

£30.00

+ £7.5 Gift Aid

Anonymous

5 months ago

Keep smiling!

About the charity

The Bradley Lowery Foundation
The Bradley Lowery Foundation

The Bradley Lowery foundation has been set up in memory of the late Bradley Lowery. The foundation will help raise raise funds for medical treatment or equipment not available on the NHS.

Charity Registration No: 1174333

http://www.bradleyloweryfoundation.com

Donation summary

Total raised

£39,288.63

+ £506.75 Gift Aid

Direct Donations

£1,543.56

Donations via Fundraisers

£1,601.82

Offline donations

£36,143.25
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Future for Maddi

The Bradley Lowery Foundation