Lola Jennifer was born 5 weeks early in Inverness on 17th January 2015 weighing 5lbs 4oz. She spent some time in Raigmore Hospital in their special care baby unit.

It became obvious at 6 months she wasn’t hitting developmental milestones. At this time Lola was not able to sit up, was not properly weaned nor talking. Doctors thought she had leukodystrophy, a life limiting condition. Several months went by and at a checkup they did a complete 180. Lola was making progress and things started to look up.

However, Lola is now 9 and has been diagnosed with dyskinetic cerebral palsy, alongside an undiagnosed complex genetic duplication, gastroparesis and a neuropathic bladder. She is now fed through her jejunum overnight.

She still has a big fight on her hands every day, but she is feisty and nothing gets her down!

Thank you for your support.

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