CurePSP

Ken's Ride: A Ride of Hope

Ken's Ride: A Ride of Hope will be ongoing throughout the month of May, to honor and cherish the memory of Ken Appel.
US$10,741
raised of US$10,000 target
by 7 supporters
RCN 521704978

Story

Thank you for supporting Ken's Ride: A Ride of Hope to support CurePSP!

Throughout the month of May, CurePSP and Jan Appel will host a virtual biking fundraiser to honor Ken Appel - husband, father, and avid bike rider - to raise funds in support of those experiencing neurodegenerative diseases such as PSP, CBD, and MSA.

To participate in the bike challenge, head over to Racery and join us on the Missisquoi Valley Trail, in St. Alban's, Vermont- Ken's most beloved path.

"Riding his bike daily on the Missisquoi Valley Rail Trail from Spring until the cooler days of Fall had long been his passion, his pleasure. The ride was him, loving the freedom and challenge of riding his mountain bike as fast as he could, competing with only himself, being and feeling strong and invincible. One thing that did not change for Ken with the progression of the diseases was his passion for riding and his focus on being able to again ride his bike on the Rail Trail. As his illness progressed and bikes changed from his mountain bike to three-wheeler to a recumbent bike, he rode hard and regularly, continuing to challenge himself to ride as he always had done. He rode to remain strong until a cure could be found, and he again could ride on the Rail Trail. His last ride occurred only weeks before his passing." - Jan Appel

Your support will help continue CurePSP's mission of care, consciousness, and cure for prime of life neurodegeneration.

Your contribution will make a direct impact by allowing CurePSP to:

- Send educational PSP/CBD/MSA packets to patients, families, and allied healthcare providers

- Hold over 30 support groups nationwide- varying between topics, demographic, disease-specific, and location

- Provide in-home respite grants to patients to relieve the stress that is often experienced by caregivers

- Fund research grants for leading scientists to help slow symptom progression, discover a potential root cause, and ultimately find a cure for PSP, CBD, and MSA.

- Reimburse families for the cost of brain tissue donation- a vital component to further research and proper diagnosis

CurePSP is the leading source of information or support for the wrath that is Progressive Supranuclear Palsy. A disease I had never heard of, really, until my father's official diagnosis...His physical body was going against him and mentally, I saw the struggle in his eyes to accept the things he could no longer do with ease. This strange and rare disease was taking my father, and I had never heard of it.CurePSP spoke with us the next day. It would not be the first time they supported myself and my family through the ordeal of having a loved one who suffers from PSP. I support CurePSP because without, my family (and so many others) would be without awareness, resources or a network to help them." - Rachael, Ken's daughter

At Ken's core was devotion to his family, and commitment to the role of family protector, a role he fiercely assumed and never relinquished. Ken and I were married for more than 36 years. He was my soulmate, my partner, each of us having our assigned seats in life. " -Jan Appel

One time on summer vacation in Vermont, my father brought his collapsible bike that he got in the army for parachuting purposes. Ken used to ride on the crossbar of Dad's bike while my father rode up and down the dirt roads. I was too afraid to try this maneuver. But, not Ken. It was great seeing the two of them getting so much enjoyment out of the bike riding experience, until the time that Dad lost control of the bike and the two of them went tumbling. After that, my mother put an end to any more of those kinds of daredevil exploits. But, as we all know never lost his love for bike riding, which he continued throughout his life." Richard, Ken's brother

"Ride for Ken. Ride hands free. Ride fast. Ride as far as you can. And wear a pair of sunglasses."

Endless thanks for your contribution to Ken's Ride and CurePSP!

About the charity

CurePSP
RCN 521704978
CurePSP is working to improve awareness, education, care, and cure for prime of life brain diseases. These include progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), multiple system atrophy (MSA), and others.

Donation summary

Total raised
US$10,740.80
Online donations
US$1,010.00
Offline donations
US$9,730.80
Direct donations
US$1,010.00
Donations via fundraisers
US$0.00

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