As a parent, all you can hope for is a happy and healthy life for your child as possible. We are no different.

Our lives changed in a heartbeat when our son Jack was diagnosed with Duchenne muscular dystrophy in December 2015. DMD is a rare disease affecting 1 in 3,500 boys which results in muscle wastage and premature death.

There are a number of medical developments underway to help to delay symptoms and some which could help to cure this disease but the clock is ticking!

We are raising money for Jack to have the best life and care possible and also to put to research and clinical trials, both new and current, that will make a significant difference sooner rather than later to all boys like Jack who are affected by this cruel disease.

Your support means more than you could ever imagine and we thank each and every one of you for giving Jack and other boys in his position the chance of a longer and healthier life.