Asger is aged 4 from Stroud. He is one of twins, born prematurely at 31 weeks. Sadly, 24 hours after birth both of Asgers lungs collapsed and he had several procedures including chest drains to help him breathe. He spent the next 6 weeks in a critical condition in neonatal intensive care, where he was wired up to various lifesaving equipment and fed through a tube. Six weeks after leaving hospital, Asger stopped breathing and was given mouth to mouth resuscitation by his Dad, before being rushed off to hospital again for treatment.

Sometime during these traumatic events, Asger suffered brain damage and over the coming year began to show signs of missing important mobility milestones. At 18 months old he was diagnosed with diplegic cerebral palsy.

Now at 4 years old, due to his condition, his leg muscles cannot grow at the correct rate and this is causing pain and discomfort when he tries to stand. He uses a walking frame to get around but his muscles are only getting tighter as he grows. Your donation will help provide Asger with the major spinal surgery (SDR) that he so desperately needs, along with all the important post-op physiotherapy and equipment. This is our one opportunity to give him the best chance of a pain-free future and limit any damage to his legs and hips.

Life is hard for our family and involves daily physiotherapy and weekly therapy appointments and more often than not, the rest of the family misses out on normal activities because of the situation we are in. We have been greatly supported by the NHS and are so grateful to them for all of their support with Asgers journey so far. But sadly we have been caught up in the system delays and covid crisis, which means we cannot access the services that we need, as soon as we need to and are now part of the very long waiting lists that so many people are facing.

Your donation will help towards costs involved in this life-changing operation. This includes surgery, post-op and ongoing physiotherapy, the equipment and orthotics needed to support this, travel and accommodation costs relating to the operation and subsequent physiotherapy.

Asger is such a happy little boy and doesnt yet realise the challenges that he is facing. But with your help, we can make his future a better one.

Info for donors