Story
What is Heart Week?
Taking place from 7 February to 14 February 2024, Heart Week is Tiny Tickers’ annual celebration of heart heroes everywhere. It’s our chance to come together to help babies born with serious heart conditions, their families and the health professionals that care for them. Over the last 10 years we’ve seen individuals, companies, community groups and schools hold a range of fundraising activities. From crafting and cake sales to marathons and skydives, we’ve had it all - even heart parent Penny holding a ceilidh in memory of her son Anthony.
Why is it important?
A baby is born with a serious heart condition every 2 hours in the UK and despite congenital heart disease (CHD) being one of the biggest killers of infants in the UK, less than half of these conditions are picked up during pregnancy. That means over 1,000 newborns leave hospital in the UK every year with no-one realising they have a potentially life-threatening heart condition. These babies will often fall into the early stages of heart failure, significantly impacting their long-term quality of life. Some will die before anyone even realises they have a poorly heart.
By fundraising for Tiny Tickers you are giving these babies a better start in life - how amazing is that?
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I wanted to share our story because when we found out about Barney’s CHD, we took great comfort in reading other parents’ stories and it helped prepare us for what was to come. There’s no doubt about it, it’s not an easy road, and we are some of the lucky ones, however on a positive note it has put us in touch with other parents who have been a huge support. We’ll be forever grateful to Tiny Tickers for making that happen.
Barney’s heart condition, coarctation of the aorta, was diagnosed at Emma’s 20-week scan. You can read their story on our website.