My name is Henry William Brown. I was born in December 2017. However, I should have been born in March 2018! I was very poorly when I was born given limited chance of survival. But, I was a fighter and came home a week before my due date.
When I was 3 days old I suffered a brain bleed that left me with a permanent injury to my brain. As a result, I have a condition called Cerebral Palsy. Cerebral Palsy affects everyone very differently. I have Hemiplegia and Diplegia Spasticity. This means my legs have tight muscles making it difficult for me to walk without assistance.
To help my Hemiplegia I attended a CIMT course so I could learn how to use my left arm and hand. This will never function in the same way my right hand does but "Helpy" is now useful in helping me cause trouble emptying all my toys out of boxes and my favourite activity, eating lots of food.
I have also attended physiotherapy sessions and since starting these sessions my awesome friend Dee has taught me to knee walk so I can get around. However, I want to be like my friends and walk!
I need special equipment to strengthen and create new brain wave connections to my legs and to use the equipment, I need help from paediatric neurology physiotherapists. Those are very big words I cant say I just call them physios!
We are also being assessed for SDR or Selective Dorsal Rhizotomy surgery and if successful a rehabilitation therapy program will be imperative to ensure we maximise my potential.
I am a VERY cheeky but also very determined little boy and I PROMISE I will work extremely hard so I can learn to walk.
We are extremely grateful for any donation you could provide. Thank you
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