Organised by Alex, The Leukodystrophy CharityGive Up something you love for a week, month or even longer and be part of a movement to beat the isolation and feeling of hopelessness which often comes for those diagnosed with a leukodystrophy, and their families.
Give Up to Give Back · 1 January 2022 to 31 December 2022 ·
We are the only charity in the UK that provides invaluable support to anyone affected by a genetic leukodystrophy.
Leukodystrophies are genetic disorders that mainly affect the white matter of the central nervous system (i.e. the brain or spinal cord). Most leukodystrophies are degenerative, causing symptoms such as impaired mobility, vision, speech and hearing, incontinence, inability to swallow and loss of cognitive skills. In some cases, they can sadly be terminal.
With your help we can continue to:
Enable more patients, families and carers to access vital support and information
Connect patients and families to others living with similar disorders
Raise awareness and improve public and professional education through events and campaigns
Advance medical research to find better treatments, enable early diagnosis and increase life expectancy.
Charities pay a small fee for our service. Learn more about fees
