Dani died on April 3rd this year in our arms at home. Just a few hours before, he had been sitting up putting the finishing touches to a Lego Star Wars X wing fighter he had been building over a week or so.

So, three years of a journey ended for him and a new everlasting way of life without him began for us on that day. That journey in all its awfulness, fear and sadness was also a journey sprinkled with marvellous memories, that will sustain us for as long as we are alive.

Daisy Lodge is a place where literally every whim, wish or need is looked after. Cancer Fund for Childrens mission statement I imagine is simply to grant families who are suffering some respite, some time away from hospitals, white coats, needles, and medicine. And that they surely do!

From the moment we arrived, we were made to feel so welcome; the boys were made to feel special and Dani was made to feel normal. The lodge is a treat and the very cool bunk beds were the main highlight, followed by the toy tractors in the garden, that the lads turned into a racetrack in 2 minutes flat. Racing out there is their abiding memory and when we went back a second time, this it was the one thing we had to recreate for Dani, despite him being far weaker. For us, the spa treatment was a gift from the Gods and helped us face another gruelling week ahead.