Solving Kids’ Cancer UK
ForeverSIX Fund
The ForeverSIX Fund has been created to raise money for pioneering neuroblastoma research and pastoral support for children accessing treatment in memory of beautiful Beau who was an amazing little girl.
Story
Beau's story
Beau was a kind, considerate, brave and sassy little girl, loved by all those who knew her. At four years old in December 2020, Beau was diagnosed with stage 4 high-risk neuroblastoma, a rare and aggressive childhood cancer that at the point of diagnosis has only a 40-50% chance of long-term survival.
Beau endured 80 days of Rapid COJEC chemotherapy, extensive surgery, high-dose chemotherapy, stem cell transplant, radiotherapy and immunotherapy.
When Beau’s mum started fundraising with Solving Kids' Cancer UK, it was for Beau to access the bivalent vaccine clinical trial in New York after frontline treatment with the hope of keeping her cancer away. But sadly, in April, just days before Beau was due to complete frontline treatment, her family were told the devastating news that Beau had relapsed, and her cancer had returned in multiple places. This meant that hopes for Beau to access the vaccine trial were no longer possible.
After Beau’s relapse was confirmed, Beau’s mum started looking into different treatment options available to her that would give her the best chance of getting back into remission. Scans showed that despite further treatment, the tumour on Beau’s spine had grown.
Beau went on to enrol on the MiNivAn trial at the University of Southampton, a trial aiming to improve outcomes for children with relapsed or refractory neuroblastoma.
Sadly, whilst initial scans looked promising, scans in January 2023 showed new areas of disease, which meant Beau was no longer able to continue with the trial. Beau received treatment back in Leeds, but all treatment was stopped in May.
Beau and her family continued to enjoy life to the max, with precious family time spent in Cornwall and Disneyland Paris.
Beau passed away on the 4th June 2023.
Nothing will bring my beautiful Beau back or take away the suffering she endured as we tried to combat this horrific disease. But change needs to happen, I am hoping to see this change in my lifetime and as our children's children grow that this same horrific fate will not be their reality," Shirley, Beau's mum
Beau's legacy
Beau was a remarkable little girl who had such a love for life, was resilient and brave and brought such joy to those around her. She inspired her local community and beyond who rallied around to support her and her family with their fundraising campaign, which also raised vital awareness of childhood cancer and neuroblastoma. Beau’s family want to continue this work and have set up ForeverSIX with Solving Kids' Cancer UK in honour of Beau and to continue her legacy.
When Beau’s family started fundraising with Solving Kids' Cancer UK, it was for Beau to access the bivalent vaccine clinical trial in New York after frontline treatment with the hope of keeping her cancer away. Within weeks of launching the campaign and thanks to an incredible community of support, the family hit their fundraising target of £317,000 – and have since raised an incredible £697,943.
Funds raised for Beau’s fundraising campaign that could not be used for her treatment provide the basis for the ForeverSIX fund. The future funds raised through the ForeverSIX fund are dedicated to funding innovative neuroblastoma research for better and safer treatments for children like Beau and providing pastoral support for children accessing treatment.
Solving Kids' Cancer UK are a wonderful charity, they support families like mine, drive change and fund the important research necessary to combat this horrific disease. This charity is made up of individuals and professionals who understand this landscape, they know what steps are needed to make the ultimate difference. They know what outcomes they want; they know what outcomes we need and they absolutely know how to get us there." Shirley, Beau's mum
Terms and conditions
Funds raised for Beau’s fundraising campaign with Solving Kids' Cancer UK that could not be used for her treatment provide the basis for the ForeverSIX fund. The future funds raised through the ForeverSIX fund are dedicated to the areas of spend chosen by the family and are currently designated to the funding of research grants, research-related activities of the charity in accordance with Association of Medical Research Charities (AMRC) guidelines; providing pastoral funds to families we support and supporting those fundraising for access to treatment.