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Thank you for taking the time to visit Louie's JustGiving page.

Louie is a cheeky chappy with a wicked sense of humour. He is constantly smiling, singing "Twinkle Twinkle Little Star," and will do anything for a chocolate button!

As many of you know, Louie was born 8 weeks prematurely on 26th July 2012, weighing 4lbs 4oz. After spending his first 3 weeks in SCBU (Special Care Baby Unit), we were finally allowed to take our baby home.

For the first 2 months, everything seemed perfect. Louie was a happy, healthy boy but began to experience severe reflux after his feeds. During his 4-month check-up, the Paediatrician noticed Louie had increased muscle tone in his lower limbs (stiffness in his legs) and a tendency to arch his back when displaying emotion.

Alongside this, Louie wasn't reaching his developmental milestones. However, this is quite a common finding in premature babies, so we remained patient. Nevertheless, our concerns began to grow.

At 10 months, our world fell apart when we were faced with the news that Louie may have Cerebral Palsy. We were told that he may never walk unaided. Words cannot describe how devastating this is for a parent to hear.

At that point, we had no idea what challenges lay ahead for our little Lou Bear—challenges no child or family should have to face. We tried our best to remain optimistic, but the not knowing was heartbreaking. After numerous requests, we managed to get Louie an MRI scan at 18 months old. Our worst fears were confirmed. Louie was diagnosed with Cerebral Palsy.

Louie had suffered a type of brain damage called PVL (Periventricular Leukomalacia) before, during, or just after birth. As a result, the pathways from brain to muscle are disrupted, and this affects his balance and the mobility in both his legs and his left arm.

Louie is now 2 and is an adventurous, determined little boy, desperate to be on his feet. He would love to be able to join in and play with all his friends.

As a parent, you would do anything for your child, and our aim is to give our son the best possible chance in life. Sadly, there is no cure for Cerebral Palsy, but there is hope.

Our goal is to raise £120,000 in the next 18 months to enable us to take Louie to America to undergo surgery called SDR (Selective Dorsal Rhizotomy). This will permanently reduce the stiffness in his legs, enabling him to walk independently. SDR is not a cure by any means, but it is a huge step on the road toward independence.

Early intervention is key with Cerebral Palsy, so we aim to get Louie to America for surgery between 3-4 years old.

The funds raised will also go towards acquiring the equipment that will help Louie's progress and his intensive physiotherapy programme, pre- and post-surgery, to ensure he gets the best results after the operation.

7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.

If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.

Thank you for reading Louie's story, for your interest, and for your support.

Lucy & Nick

Follow Louie's journey:

Facebook - Footsteps for Louie

Twitter - @footsteps4louie