Evie is our beautiful daughter, and we love her dearly. We will never give up on her.

For Evie, every day is like climbing a mountain. The activities that most people take for granted—walking, communicating, and staying safe—are daily challenges for Evie. She needs our help and support for even the simplest tasks.

In January 2014, when Evie was just 1 year old, our lives changed forever. One night, she had a seizure, stopped breathing, and collapsed in our arms. After performing CPR while waiting for the ambulance, Evie was revived with oxygen. That night, we feared we had lost her. While we’re grateful that she survived, it’s a constant reminder of how precious she is to us.

Evie stopped hitting developmental milestones around 9 months old, and we've since undergone numerous assessments and tests to understand what’s happening. Evie doesn’t have a specific diagnosis yet, but her last MRI revealed an abnormality in her brain—hypo-myelination, a white matter condition that disrupts message transmission and processing. Despite genetic and other tests, we still don’t know the cause, and the prognosis remains unclear. Our paediatrician has informed us this will likely be a lifelong condition with no current treatment.

As a result, Evie has global developmental delay, meaning she’s significantly behind her peers. She has hypo-mobility, which makes it hard for her to find stability due to her joints being very flexible. Her cognitive development is delayed, and her understanding of the world is limited, often leaving her frustrated and upset as she struggles to communicate her feelings.

Despite all these challenges, Evie shows an incredible desire to connect and move. She blows kisses, smiles, cuddles, and brings joy to even the darkest days. We can’t imagine how difficult this must be for her, but we are committed to doing everything we can to help her develop and give her the best possible quality of life.

That’s why we’re fundraising for therapies to support Evie’s ongoing needs.

Family and friends often ask how they can help, and to date, this has been a tough question to answer. We hope this fundraising campaign provides a way for people to get involved and actively support Evie, which in turn helps our whole family.

We are raising funds for Evie’s ongoing therapies. Our current priority is to provide Evie with intensive therapy, which costs approximately £5,500 for a 3-week course, or £70-90 per hour. Every £1 donated will make a meaningful difference in Evie’s life.

You can read more about Evie’s journey and how you can help on our website:

Evie’s Everest

If you’d like to get involved or have any questions, please don’t hesitate to contact us at evieseverest@gmail.com.

Thank you for your support,

Adam and Rachel

7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.

If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.