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Closed 01/08/2021
Aniridia Network

European Aniridia Conference

We need funding to bring together the worlds top doctors, scientists and patents, for a 3-day conference, to find cures for sight loss and other impairments caused by the rare, complex, genetic eye condition aniridia.
£25,015
raised
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Closed on 01/08/2021
RCN 1176792

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Story

Growing understanding of aniridia is challenging, due to the limited and distributed patient population, its highly variable impact on people and the complications of linked conditions.

This conference is the only European forum for discussing the medical aspects of aniridia. It accelerates the development of better treatments and hugely improves patient care.

"There are a number of exciting possibilities for the treatment of aniridia now arising from research. The conference will examine the possibilities and how the research in areas such as stem cell therapy and drugs might move from the lab to the clinic. - Consultant Ophthalmologist.

Every 2 years, in a different city, the event attracts over 70 of the best ophthalmologists, researchers, vision scientists and geneticists from around the globe. They give formal presentations about their pioneering surgery and experiments relating to aniridia. People with aniridia also attend to share their perspectives and disseminate the learning gained in their own countries. Together the professionals and patients form a winning community focused on finding effective treatments for all aspect of aniridia.

The conference is was scheduled for August 2020 in London. It has been postponed and a new date has not yet been decided. If it is not the fund will be given to the next conference expected to be in Spain.Get details at the European Aniridia Conference website

But it will only be possible with donations from various sources. Make a difference to the lives of thousands of patients and relatives around the world by helping us solve the medical challenges of aniridia.together.

Make a donation on this page, perhaps with money earned from a stall or doing a stunt

If you represent a compnay that could sponsor the event read our exciting prospectus .

Save time and the environment: send electronic instead of paper Christmas cards and donating the money you would have spent to the conference

The European Aniridia Conference 2020 wil lbe hosted by Aniridia Network. Here is a taster of what their events are like.

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About the charity

Aniridia Network

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RCN 1176792
Aniridia Network is a support group and charity for people affected by aniridia: those who have it plus their family, carers, and other support givers, as well as educators, doctors and researchers. We want all these people to be hopeful, confident, supported and well informed regarding aniridia.

Donation summary

Total raised
£25,015.00
+ £52.50 Gift Aid
Online donations
£540.00
Offline donations
£24,475.00
Direct donations
£310.00
Donations via fundraisers
£230.00

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