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Closed 15/06/2023
Muscular Dystrophy UK

Where there's a Will there's a Way- THE DUCHENNE RESEARCH RELAY

Over three days, between 12 - 14 August 2021, Wills Team will attempt to ride over 380 miles to fund research and help find a treatment for Duchenne Muscular Dystrophy.
£43,171
raised of £10,000 target
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Closed on 15/06/2023
RCN 205395 (England and Wales) - SC039445 (Scotland)

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Story

Over three days, between 12 - 14 August 2021, Wills Team will attempt to ride over 380 miles to fund research and help find a treatment for Duchenne Muscular Dystrophy.

Duchenne Muscular Dystrophy (DMD) is a genetic disease that causes muscle weakness and wasting. Children born with DMD have a fault, known as a mutation, on their dystrophin gene. Genes are smaller sections of the bodys DNA. They are the instructions that make our bodies work. For people with DMD, the fault on the gene means that they cannot produce dystrophin, which is a protein that protects muscles. Without dystrophin, muscles get damaged more easily and so muscle strength and function is weakened.

DMD almost always affect boys, and is typically diagnosed in childhood. There are around 2,500 patients in the UK and an estimated 300,000 worldwide. It is classified as a rare disease. Today there is no effective treatment or cure.

Will Taylor was diagnosed with DMD in June 2014 at the age of 4. Will is now 11 years old.

In August 2021, Wills Mum and Dad - Sue and Sam, and a team of friends, will attempt to ride between four of the UKs major DMD Research Centres in the DUCHENNE RESEARCH RELAY to raise awareness of the disease, to bring focus on the research, and most importantly, to fund the ground-breaking work that scientists in the UK are undertaking to find treatments for Duchenne Muscular Dystrophy.

Starting at Great Ormond Street Hospital in London on Thursday 12th August, the team plan to ride to the MDUK Neuromuscular Centre at Oxford University, on to Alder Hey Hospital in Liverpool and finish at the Centre for Life in Newcastle on Saturday 15th August - a distance of over 380 miles in three days. In anyones book, this is a huge, huge challenge!

All of the money raised by the DUCHENNE RESEARCH RELAY will go directly to the Muscular Dystrophy UK Duchenne Breakthrough Research Fund. Please support Wills team as they take on this incredible challenge and donate if you can.

Thank You.

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About the charity

Muscular Dystrophy UK

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RCN 205395 (England and Wales) - SC039445 (Scotland)
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to beat muscle-wasting conditions.

Donation summary

Total raised
£43,170.18
+ £10,169.75 Gift Aid
Online donations
£38,985.18
Offline donations
£450.00
Direct donations
£10,337.40
Donations via fundraisers
£32,382.78

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