Dravet Syndrome UK

DSUK vs Zipworld Velocity

Join us for an adrenaline-rush like no other and experience the world's fastest zipline while raising vital funds for Dravet Syndrome UK.
£3,660
raised of £12,500 target
RCN 1128289

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Story

Join us for an adrenaline-rush like no other on Saturday 14th September 2024, and experience the world's fastest zipline while raising vital funds for Dravet Syndrome UK.

Bookings now being taken for:

Date: Saturday 14th September 2024

Where: Penrhyn Quarry, Bethesda, Bangor, N.Wales

Time: Midday - 6pm

Who's it for?: Anyone can take part as long as you meet the conditions - Weight - Max 130kg, Height - Min 1.2m

This is a truly unique and exhilarating experience. You’ll soar over Penryhn Quarry, at speeds of up to and over 100mph, while taking in breath-taking views of Eryri (Snowdonia). It’s a 1.5km zip line and you can take part alongside your family and friends, as there are 4 parallel lines in operation. This is a huge adrenaline challenge and we know you’ll want to be a part of it!

What's it all for?

Dravet Syndrome is a rare, life-long and life-limiting neurological condition, affecting one in every 15,000 people in the UK. As well as severe, difficult-to-control seizures, Dravet Syndrome encompasses intellectual disability and a spectrum of associated conditions (known as comorbidities), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, feeding and sleep. Every child or adult with Dravet Syndrome is different, with some affected more severely than others, or with a different emphasis across symptoms and comorbidities. But for all, the condition is complex and can be highly unpredictable.

Dravet Syndrome UK is the only UK organisation dedicated to improving the lives of those affected by Dravet Syndrome. Our mission is to bring hope to families living with Dravet Syndrome through support, education and medical research. You can find out more about our work by visiting our website.

By donating, you're not only spurring our awesome abseilers on as they conquer their fears, you're helping us to support all families affected by Dravet Syndrome. Each year we need to raise over £400,000 to keep providing our much-needed services. We couldn't do this without the generous support of our incredible community. Thank you so very much for donating to Dravet Syndrome UK today.

About the charity

Dravet Syndrome UK

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RCN 1128289
Dravet Syndrome UK is dedicated to improving the lives of children and adults living with Dravet Syndrome through medical research, education and awareness and appropriate support.

Donation summary

Total raised
£3,660.00
+ £836.25 Gift Aid
Online donations
£3,660.00
Offline donations
£0.00
Direct donations
£0.00
Donations via fundraisers
£3,660.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.