CSF Leaks can happen to anyone. People affected need specific support, to make sense of what is happening and connect with others going through the same experiences.

CSF leaks are treatable if the symptoms are recognised and appropriate action taken with early intervention having the best outcomes. Our aim is for everyone with a CSF Leak to get appropriate treatment to enable a return to a normal active life again.

We are raising money to raise awareness, support patients and encourage research into techniques for diagnosis, treatment and prevention.

We need your help, thank you!