The University of Edinburgh

National CJD Research & Surveillance Unit

Creutzfeldt-Jakob disease (CJD) is a rare illness which affects both humans and animals. CJD is progressive, currently untreatable and ultimately fatal. Research is vital.
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raised of £15,000 target
RCN SC004307

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Story

CJD (Creutzfeldt-Jakob Disease) is a rare illness and is one of a group of diseases called prion diseases, which affect humans and animals. Prion diseases exist in different forms, all of which are progressive, currently untreatable and ultimately fatal. Their name arises because they are associated with an alteration in a naturally occurring protein: the prion protein.

CJD was first described in 1920. The commonest form is called sporadic CJD and occurs worldwide causing around 1-2 deaths per million population per year. A new form of CJD (variant CJD) linked to bovine spongiform encephalopathy (BSE) in cattle was identified in 1996. There are also genetic forms of human prion disease linked to mutations of the prion protein gene and cases caused by infection via medical or surgical treatments (iatrogenic CJD).

The National CJD Research & Surveillance Unit (NCJDRSU) is part of the Centre for Clinical Brain Sciences (CCBS), University of Edinburgh and is part of the Deanery of Clinical Sciences in the College of Medicine and Veterinary Medicine.

https://www.cjd.ed.ac.uk/

https://www.ed.ac.uk/clinical-brain-sciences

https://www.ed.ac.uk/fundraise-your-way

About the charity

You can choose from a variety of Edinburgh projects to Fundraise Your Way for. All the money you raise is processed through the University of Edinburgh Development Trust (reg charity SC004307) ensuring 100% received goes directly to the cause you care about and put to use straight away. Thank You.

Donation summary

Total raised
£25,447.48
+ £3,842.88 Gift Aid
Online donations
£21,337.48
Offline donations
£0.00
Direct donations
£290.00
Donations via fundraisers
£25,157.48

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