Meet Albert – Our Superstar!

Albert is 8 years old and lives in Brentwood, Essex. He is our Prince, our Superstar, and we are his biggest fans!

For those of you who don’t know us, here’s a little introduction:

Albert was born two weeks late via an emergency c-section. He was a happy and seemingly healthy baby. However, by 10 months old, Albert wasn’t meeting his milestones, which led to referrals to a pediatrician, physiotherapist, and occupational therapist. After years of hospital appointments, therapy sessions, and genetic testing, Albert was diagnosed with Pitt Hopkins Syndrome (PTHS)—an ultra-rare genetic and neurological disorder affecting the TCF4 gene on chromosome 18. He has also been diagnosed with Autism.

What is Pitt Hopkins Syndrome?

Pitt Hopkins Syndrome presents a wide variety of symptoms, which can vary greatly in severity from person to person. Early signs include low muscle tone (hypotonia) and significant developmental delays, often noticeable in the first year of life.

Motor skills: Some children learn to walk later than expected, while others may never walk independently.

Speech: Speech is significantly delayed, and while some children say a few words, most do not speak, though many can understand and follow simple directions.

Cognitive challenges: Intellectual disability typically ranges from moderate to severe.

Other challenges: Seizures, breathing difficulties, and chronic constipation can also occur.

Despite these challenges, individuals with PTHS are often joyful and affectionate. Albert’s infectious smile lights up every room he enters, and those who know him will tell you just how happy he is.

Albert’s Journey

Albert cannot crawl, walk, or talk, and he thrives on sensory input—he absolutely loves lights! He will always need support from therapists and specialized equipment to help him achieve as much independence as possible.

The NHS provides what they can, but the services are stretched thin. That’s why we are fundraising: to ensure Albert gets the therapy and equipment he needs to live the best, most independent life possible.

Our Fundraising Journey

We initially set a goal of £10,000 and have been so grateful to achieve it. Now, we’re increasing our target so we can keep providing Albert with the therapy and resources he needs.

Here’s an idea of the costs:

One hour of physiotherapy per week costs £4,420 per year.

This doesn’t include additional therapies, block sessions, or the specialized mobility and sensory equipment he needs to thrive.

How You Can Help

Every donation, big or small, will make a difference in Albert’s life. Your support will help us fund his therapies and equipment, giving him the best possible chance at greater independence.

We’re also planning some fundraisers this year, so stay tuned!

Thank you so much for taking the time to read Albert’s story.

Lots of love,

Carly, Brad, Albert & Mabel xx

7.5% of all donations to Tree of Hope in relation to this appeal will be allocated to the general charitable purposes of Tree of Hope to cover our core operating costs.

If we raise insufficient funds, or surplus funds, then the funds will be used, if appropriate, to fund support for our child’s needs in accordance with Tree of Hope’s charitable objects. If in those circumstances we are unable to use all or part of the funds for the benefit of our child in accordance with Tree of Hope’s charitable objectives, then any funds that cannot be used will be transferred to be used for the general charitable purposes of Tree of Hope.