Just4Children
Thomas's Precious Journey with Lissencephaly
Just4Children need funds to ensure Thomas has specialist therapies and equipment to give him the best quality of life.
Story
Thomas is aged 1 from Faversham in Kent. He has a life limiting condition called Lissencephaly. In addition, he has sub cortical band heterotopia, is developmentally delayed, endures epilepsy and is also severely sight impaired.
Just4Childrens campaign is set up to help Thomas to have the best possible quality of life that he can have. I want him to be able to have the equipment he needs to be able to join in with his older siblings, or for him to have the most comfortable seating. Thomas does not have head control so its important to find the right seat for him.
Thomas also needs the best appropriate therapies. Right now we are really concentrating on head control, gripping and rolling over.
We dont know how long we will have with our precious Thomas. We want to make as many memories with him as possible, days out and family holidays, Thomas really enjoys seeing lights and going on swings. Remaining funds will be used for these special memories.
Please support us.
See Thomas on Facebook