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Closed 07/10/2022

Cure EB Butterfly Run 2022

Organised by Cure EB

A celebration of inclusivity on 25th September 2022 at London's Olympic Park, inviting people of all abilities to complete a 1k, 5k or 10k race in aid of Cure EB.

£1,696
raised
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Butterfly Run 2022 · 25 September 2022 ·

Closed 07/10/2022

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Story

The Butterfly Run is back! After a break due to the pandemic, we are delighted to again be hosting our celebration of inclusivity at the Olympic Park in London on Sunday 25th September 2022. IT'S TIME TO FLY!

We are encouraging as many people of all abilities to run, walk, wheel, or whatever they can do to complete a 1k, 5k or 10k race - and raise funds to cure EB!

Join our campaign to help all butterfly children fly free - donate or create your own fundraising page today.

Why Butterfly Run?

Cure EB funds medical research to find a cure for epidermolysis bullosa (EB), a severe genetic skin condition that leads to blistering and skin loss at the slightest friction. Children with the condition are often referred to as 'Butterfly Children' as their skin is said to be as 'fragile as a butterfly's wings'.

What we want most is for children and adults to fly free from the pain of EB and make the blisters and wounds stop.

To find out more about us and the research we fund, visit www.cure-eb.org

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About the charity

Cure EB

Verified by JustGiving

RCN 1158672
Cure EB (formerly the Sohana Research Fund) exists to find a cure for Epidermolysis Bullosa- a very painful genetic skin blistering condition that leads to malignant skin cancer in young adulthood.

Donation summary

Total
£1,695.94
+ £306.00 Gift Aid
Online
£1,695.94
Offline
£0.00
Direct
£1,355.94
Fundraisers
£340.00

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