500 Legs

"500 Legs Walking" will be in Summer this year! .It is simple to organise - just pick a date, pick a venue and get as many legs walking as we can. In previous years we have had humans, dogs and alpacas!
Our campaign is now complete. 84 supporters helped us raise £2,410.00
Visit the charity's profile"500 Legs Walking" will be in Summer this year! .It is simple to organise - just pick a date, pick a venue and get as many legs walking as we can. In previous years we have had humans, dogs and alpacas!
500legs2019 · 31 August 2019 to 31 December 2019 ·
Closed 31/08/2019
The campaign has now expired but it's not too late to support this charity.
Visit the charity's profileCaspyn age 2 , can only tolerate ~20 foods and reacts to external sensory triggers. He has never slept more than a few hours at a time, often due to gastrointestinal discomfort. He tolerates some foods after gradual introduction, but many continue to worsen symptoms including rashes, spasms, hyperactivity and anxiety. He has a benign mast cell tumour that flares when he is reacting,
The charity has many hundreds of children with a similar pattern of symptoms to Caspyn, all on similar medication but without a formal diagnosis. In other countries they likely would have a diagnosis of Mast Cell Activation Syndrome (MCAS), enabling patient cohorts for research. In the UK they are invisible to the system, there is no specialist centre and adults and children just go in circles seeing dozens of different doctors individually for their different symptoms. A specialist NHS centre focusing on this condition would save the NHS money . Your donation will help the charity support patients like Capsyn and their families and enable us to raise awareness and advance understanding of this condition amongst UK doctors.
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