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Sturge-Weber Foundation

2024 Myla's Mission

Myla's Mission is an annual fundraising walk held in Indiana for Sturge-Weber Syndrome. Myla was born with this rare disease and her family holds this community event each year to raise funding for research.
raised of US$25,000 target
by 8 supporters
Closes on 25/08/2024
RCN 742485813


Myla was diagnosed with Sturge-Weber Syndrome (SWS) at 8 months old. SWS is a rare disease that not only causes the commonly seen Port Wine Birthmark on the face, but it also affects the brain (seizures) and the eyes (glaucoma). There is not a cure, yet.

Through your support we hope to raise funds to continue research that will lead us to better treatments for this condition and ultimately a cure.

Join us in celebrating Myla's extraordinary life and help find the answers needed to overcome this rare disease!

About the charity

We exist to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port Wine Birthmark conditions. We support them with collaborative education and advocacy in tandem with translational research as we promote effective management and awareness.

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