Our campaign is now complete. 8 supporters helped us raise US$350.00
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Organised by Sturge-Weber FoundationMyla's Mission is an annual fundraising walk held in Indiana for Sturge-Weber Syndrome. Myla was born with this rare disease and her family holds this community event each year to raise funding for research.
Closed 25/08/2024
Myla was diagnosed with Sturge-Weber Syndrome (SWS) at 8 months old. SWS is a rare disease that not only causes the commonly seen Port Wine Birthmark on the face, but it also affects the brain (seizures) and the eyes (glaucoma). There is not a cure, yet.
Through your support we hope to raise funds to continue research that will lead us to better treatments for this condition and ultimately a cure.
Join us in celebrating Myla's extraordinary life and help find the answers needed to overcome this rare disease!
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