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Closed 30/08/2024
Intractable Epilepsy Charity

100 Miles to Stop 100 Seizures

Join us on Purple Day, 26th March, to impact children with intractable epilepsy. Support our "100 Miles to Stop 100 Seizures" campaign!
£45
raised
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Closed on 30/08/2024
RCN 1199192

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Story

🌟 Fundraising Campaign: 100 Miles to Stop 100 Seizures 🌟

Join us in celebrating Purple Day on 26th March and make a meaningful impact on the lives of children with intractable epilepsy. We are organizing a fundraising campaign called "100 Miles to Stop 100 Seizures" in support of the Intractable Epilepsy charity. Our mission is to alleviate suffering, improve access to treatment, and raise awareness about this condition.

The aftermath of having a seizure is sometimes described as experiencing post-workout pains and can cause sufferers to feel muscle aches. So, to replicate that feeling, we are challenging you to participate in our “100 miles to stop 100 seizures” campaign.

🎗 Our Charitable Objectives 🎗

The charitable objectives of the Intractable Epilepsy charity are specifically focused on the relief of sickness and the preservation and protection of good health, particularly for children with intractable epilepsy. Here's how your generous contributions will make a difference:

1️⃣ Financial Support for Medical Grade Cannabis:

We aim to provide financial support for the cost of prescriptions for medical grade cannabis, as prescribed by a named specialist clinician on the Specialist Register of the General Medical Council. This medication is prescribed in accordance with UK government legislation, regulations, and NHS guidelines. By funding these prescriptions, we can help alleviate seizures and improve the quality of life for children with intractable epilepsy.

2️⃣ Grants and Bursaries for Medical Care and Treatment:

We will provide grants or bursaries to enable sufferers of intractable epilepsy to access necessary medical care and treatment. Your contributions will help bridge the financial gap and ensure that every child receives the care they need to manage their condition effectively.

3️⃣ Raising Awareness:

We believe that raising awareness is crucial in understanding and supporting those affected by intractable epilepsy. Through this campaign, we aim to educate the public about this condition and dispel misconceptions. By spreading knowledge, we can reduce stigma and create a more inclusive society for children with intractable epilepsy.

4️⃣ Support for Children and Families:

We are committed to providing support to children and their families who are experiencing the challenges of intractable epilepsy. online platforms, and community events, we will be there to provide guidance, answer questions, and offer a supportive network for those in need.

5️⃣ Information Dissemination:

We will disseminate information about available treatments, breakthroughs, and research in the field of intractable epilepsy. By keeping the community informed, we can empower individuals and families to make well-informed decisions regarding their healthcare.

✨ Your Impact and How to Get Involved ✨

By participating in the "100 Miles to Stop 100 Seizures" campaign, you can make a tangible difference in the lives of children with intractable epilepsy. Here's how you can get involved:

1️⃣ Pledge your Support:

Join us in our mission by making a pledge to support the campaign. Every contribution, big or small, will help us reach our goal and improve the lives of children battling intractable epilepsy.

2️⃣ Run, Walk, or Cycle:

Take on the challenge of completing 100 miles on foot or by cycling over a two months period. You can participate individually or as a team by recording your progress through an app. Set up a fundraising page and encourage friends, family, and colleagues to sponsor your efforts. Together, we can stop 100 seizures and create a brighter future for children with intractable epilepsy.

3️⃣ Spread the Word:

Help us raise awareness by sharing our campaign on social media platforms, using #100MilesToStop100Seizures and #PurpleDay. Share your personal connection to epilepsy, stories of resilience, and the importance of supporting this cause. Together, we can make a powerful impact through the collective strength of our voices.

🌈 Let's Make a Difference! 🌈

Join us on the journey to stop 100 seizures and transform the lives of children with intractable epilepsy. Together, we can provide the financial support, medical care, and awareness needed to improve their quality of life. Your contribution will make a lasting impact and bring hope to children and families affected by this condition.

Thank you for your support and generosity.

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About the charity

Intractable Epilepsy Charity

Verified by JustGiving

RCN 1199192
The charity funds prescription costs of medicinal cannabis for those with Intractable Epilepsy when prescribed by a specialist clinician on the GMC register and in line with NHS guidance. Many of these children and young adults suffer hundreds of devastating seizures every day. Nearly all have exhausted the traditional pharmaceutical anti-epileptic drugs. Medicinal cannabis is the only medicine that helps. Medicinal cannabis has been legal in the UK since 2018, but access on the NHS remains blocked. So the families have to cope with the immense strain of fundraising up to £2,000 a month to access it privately and deal with the daily care of their sick children. Imagine if this was your child. Please help us to help them. Your donations will support the families to continue getting the medicine they so desperately need.

Donation summary

Total raised
£45.00
Online donations
£45.00
Offline donations
£0.00
Direct donations
£0.00
Donations via fundraisers
£45.00

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