About LFWBD
Local families with bleeding disorders are a group of families that offer each other support and understanding about what it is like to live with a bleeding disorder. We offer this support via educational and social events that offer guidance based on experience and, a network of families to create and build friendships within.
We were established in March 2019 and have since become a registered charity.
Our members live with mild, moderate and severe forms of Haemophilia A, B and vonWillebrands but, we welcome those with other bleeding disorders too.
We believe that sometimes, parents, carers, siblings or children living with a bleeding disorder just want to connect with others experiencing the same challenges that their condition brings. It is therefore our goal to offer "support for families, by families".
info@bleeding-disorders.co.uk
LFWBD Registered charity number 1186979