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Barth Syndrome UK

We support families & fund research to improve the lives of affected people

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About Barth Syndrome UK

Barth syndrome is a complex and life threatening genetic condition that affects the heart, immune system and growth. Our children and adults struggle with extreme fatigue, sudden heart arrhythmias and recurring infections. Help us to fund research and to find a cure for this devastating condition.

www.barthsyndrome.org.uk

info@barthsyndrome.org.uk

Barth Syndrome UK Registered charity number 1181830

Donation message

"In memory of our beloved grandson Sebastian."

Alan & Kate donated

£200.00 + £50.00 Gift Aid

Donation message

"This donation is in memory of Sebastian Vavasour, son of Laura and Joe Vavasour and grandson of Kate and Alan Taylor, who died on 11th December 2013 aged two and a half years."

Anonymous donated

Donation message

"In Memory of Sebastian"

Barrie & Rosalind donated

£100.00 + £25.00 Gift Aid

Donation message

"Supporting Jan’s continued support and hard work for this charity with gratitude. Dxx"

Deb donated

Donation message

"In memory of Sebastian xx"

Anonymous donated

£100.00 + £25.00 Gift Aid

Donation message

"Fantastic charity doing amazing things! Keep up the great work! "

Dan & Helen Langley donated

£60.00 + £15.00 Gift Aid

Russell Stevens has raised $6,400.40 so far

I'm Russell is Swimming the English Channel for Russell Stevens because

204 Supporters

Sharon Cotterill has raised $1,988.05 so far

I'm walking 2.62 miles in the garden for 10 days for Sharon Cotterill because they are looking for a cure for Barth Syndrome

87 Supporters

Sharon Cotterill has raised $1,050.42 so far

Barth Birthday Raffle 2020

3 Supporters