The MPS Society is personally important to me as they provided, and continue to provide support to my nephew Ollie.  Ollie suffers from MPS Hurlers1 which is the only form of MPS which can be treated, he was fortunate enough to have gone through a very tough treatment in the USA, where he had a Chord Blood Stem Cell transplant. During his time in the hospital his parents witnessed other children dying, who were going through similar treatment.  Ollie went through many difficult times during his intensive treatment including a heart attack and he is one of the lucky few. As a result of his treatment he is possibly one of the healthiest MPS suffers alive today and it would be difficult to tell that he has MPS.

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MPS affects something like 1 in 25,000 births.  It is a multi organ disease that causes progressive physical disability and, in many cases severe degenerative mental deterioration resulting in death in childhood. 

The Society researches MPS and provides support for Families by way of help lines, regional clinics, information days, conferences and provides bereavement support to individual families where MPS has taken life.

Please dig deep and sponsor me on this web site or feel free to contact me directly.

Donating through this site is simple, fast and totally secure. It is also the most efficient way to sponsor me: The Society For Mucopolysaccharide Diseases will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you. The MPS society does a great job, they are not funded by anyone but those of us that give. The children and their families that benefit from the support given by the society will all benefit as a result you your donation.

I have run a marathon before, in 1996. My goal will be to beat the time I achieved then - some 12 years ago!