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Action for BPAN was created by two mothers who's daughters have been diagnosed with this rare Neuro-degenerative condition. As the UK's first charity for BPAN we want to fund the vital research for a cure or treatment and give a voice to this rare community of wonderful children and parents.
www.actionforbpan.com
actionforbpan@gmail.com
Action for BPAN Registered charity number 1210529
"Bertie bear "
Jasmine donated
£10.00 + £2.50 Gift Aid
"Wishing you success in raising money for research for Bpan 😘💕😘"
Tricia Hutchings donated
£20.00 + £5.00 Gift Aid
"For My Beautiful great grandson Bertie. Let’s find this cure for you and all the other children/adults who are suffering with this. "
Pauline Napier donated
£90.00 + £22.50 Gift Aid
"For BPAN and Emily Love from Raefe "
Kemmis family donated
£250.00 + £62.50 Gift Aid
"Keep smashing everything you do Bertie boy! A whole life in front of you and 100s of supporters behind you 💙 Lots of love from Fryers flowers 🖤"
Bertie donated
£40.00 + £10.00 Gift Aid
"Keep strong you amazing boy 🥰 Xx"
For Bertie donated
