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Taylor was born on the 28/03/2014 at 26 weeks gestation via emergency C-section, weighing a tiny 1lb 6oz due to severe pre-eclampsia and IUGR and HELLP at homerton hospital. What followed over the next 7 month hospital stay can only be described as a living nightmare. 4 hospitals in 4 different counties.
From birth Taylor was intubated and relied on life saving machinery to keep him alive, he went through 10's of blood tranfusions, infections, retinopathy of prematurity, fractures to his right hand and left foot at only a few weeks of age. He suffered from aspirational pneumonia causing him to take a few steps backwards. During the first 2 months Taylor's stomach would bloat and become very hard, doctors believed him to have NEC. A condition that affects the bowel and causes the bacteria naturally found in the gut to destroy the bowel walls and cause perforations. On the 28th May Taylor was blue lighted by ANTs ambulance service to GOSH. We was told the worst case scenario. If Taylor's bowel was to infected it may not be able to be saved. We would then be left with no choice but to let our boy go! Thankfully this was not the case and our little miracle had life saving surgery, which revealed that it was not NEC but we was then faced with the care of a stoma for 4 months. Taylor then had a number of SVT and is diagnosed with Wolff Parkinson white syndrome. A heart condition that if left untreated could be fatal. We returned to GOSH twice to have his stoma reversal surgery, which was successful on the final visit at end of September. Surgery went well, but then Taylor had trouble coming of the ventilation. Early hours of the morning after his surgery Taylor needed to be resuscitated and re intubated on to the high frequency ossilator ventilation machine he was on this machine for about 36 hours, it don't sound long but when you see a tiny not even 7lb baby medically paralysed, shaking from the force of the machine keeping his lungs inflated its horrible. Our little fighter pulled through that and was soon back on optiflow and out of intensive care for the first time in his life. We was returned to our local hospital where Taylor finally came home end of October 2014. Since he has been home he has come on leaps and bounds.
Without the fantastic Drs, Surgeons nurses and all the rest of the support team in GOSH and the other hospitals on our journey our little man may not be here today. This is my way of saying a big thank you for saving his life.
We as a family would really appreciate any donation amount big or small, what ever you can spare to help save the life of another baby or child, to help other parents that are facing a struggle and lengthy stay away from their home to stay with their sick child In hospital, as it's not only the children the hospital looks after, they offer accommodation to parents free of charge while their child is in hospital. I don't know what I would of done if this was not offered to me.
Thank you all in advance
Zoe, Matt and of course our miracle boy Taylor
Xx