Claudia Beard

Claudia's Undiagnosed Children's Day 2021 Raffle

Fundraising for Genetic Alliance UK
£525
raised
Undiagnosed Children's Day 2021 Raffle, 30 April 2021
Genetic Alliance UK

Verified by JustGiving

RCN 1114195
We engage, support, research & campaign to improve policy & healthcare outcomes

Story

** THE COST PER ENTRY IS £2 **

Have you heard of SWAN?
My child is a SWAN, in other words, he has a syndrome, a genetic condition that doesn't have a name yet.
SWAN UK is a charity that supports families like mine to navigate life, testing, therapies with a child that is undiagnosed. 


Approximately 6000 children are born in the UK each year with a syndrome without a name - a genetic condition so rare that it is often impossible to diagnose.
Without a diagnosis it can be difficult to access basic information and support.

SWAN UK is currently the only UK based support specifically for children like my son and our family.

Undiagnosed Children's Day is an annual, nationwide event that aims to raise awareness of undiagnosed genetic conditions and funds so that SWAN UK can continue to provide support to families affected by them.

Please support us by buying some raffle tickets, we have some amazing prizes (and more being added all the time):

** Main Prize:
2 night midweek stay @ North Lake Chapel in Devon (sleeps 15)

*  Brand New  Indi Balance Bike 
* Children's Hair Set Pouch & Mask from Starry Llama
*  A Little Box Full of Confidence and A Little Box Full of Happiness cardsVie Portland from Vieness Discover Your Love CIC
* Massage Therapy Session from Miaza in Romsey
* Play Session from I Wanna Be Role Play Village
*  Free months pass to online dance lessons for adults from Sarah Moore Dance 
*  Voucher for Headband from Kate Whyley Designs
*  Free Months Pass to Online Pilates Class from The Joyful Movement
*  250 Business Cards & 1m Long PVC Banner from Hampshire Design Studios
*  Greeting Card Packs from Donna Marie Mortimer
*  Voucher to Spend at The Gift Shed Creations
*  Access to 1 Mini-Course with Dr Jennifer Jones - Writing Coach
*  3 x Games & Stationery set worth £30-£60
*  Gift Voucher for dinner for 2 from The Dog & Crook in Brambridge
*  Bottle of Champagne

Prizes will be drawn on Friday 30th April and each winner will be contacted directly.

Thank you so much for your support.

** THE COST PER ENTRY IS £2 **

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About the charity

Genetic Alliance UK

Verified by JustGiving

RCN 1114195
We are a national alliance of over 220 charities and patient support groups. Together we advocate and campaign for the 3.5 million people in the UK with a rare, genetic or undiagnosed condition - improving diagnosis, care coordination and treatment options. We run Rare Disease UK and SWAN UK.

Donation summary

Total raised
£524.45
Online donations
£524.45
Offline donations
£0.00

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