This is a charity that I have become entirely focussed on. Helping a ‘soldier family member’ raising funds to improve treatment, research and awareness of a rare genetic disease CdLS, along with the wider awareness of all children suffering with rare illness has become a beacon of hope during these difficult times and an inspiration to the good of human spirit.  Here is Chris’ story;

My name is Chris Brannigan and Hasti is my daughter, she is 8 years old and dreams of being a chef and a dancer.Hasti however has a rare genetic disease, Cornelia de Lange Syndrome (CdLS). CdLS is characterised by reduced growth, global developmental delay, feeding problems, speech and language difficulties hearing problems and, in many cases, limb abnormalities, but it is rare for children with CdLS to become adults who live independent lives, often needing round the clock care for their entire lives. No cure or treatments exist for this terrible disease which occurs in just one in every 30,000 live births, but we are committed to change that so that all children with CdLS, both now and in the future, can enjoy better lives. But to do that, we need your help. We just need £400,000 to pay for the research to create a treatment for this disease.