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Before Millie Rose was two years old, her parents’ were sitting in a doctor’s surgery at Alder Hey Children’s Hospital, reeling from the news that their daughter has neuroblastoma – an aggressive childhood cancer. 

Millie’s chance of survival could be as low as 5%.  That’s because even after successful treatment, four out of five children will relapse and there will be nothing more that doctors can do.  If this happens, Millie’s parents know her only hope lies abroad where pioneering treatment in a select few US and European hospitals is saving children’s lives.  Facing a frightening and uncertain future, Millie Rose’s parents are determined to raise money for Neuroblastoma Children’s Cancer Alliance UK so that they can take Millie Rose abroad if they need to.

The NCCA UK is a charity that helps children access clinical treatment that is only available abroad, whilst also supporting research to bring new treatments to the UK.

“Millie is in serious trouble”, says her mother Lyndsay. “This cancer is very hard to treat – we have to know she will get the treatment she needs, when and if the time comes and that’s why we’re fundraising with the NCCA UK.”

Read Millie Rose’s story:-

Millie Rose is the youngest of three children.  By her first birthday her parents were worried about her constant stomach trouble, bugs and viruses.   A few months later, Millie’s eyes became discolored and she developed an unaccountable lump on her head.   By this time Millie’s frantic parents was visiting the doctor every week but antibiotics weren’t helping.  The next step was to take her to Alder Hey Children’s Hospital where their worst fears were confirmed - Millie had cancer and needed urgent tests to diagnose and treat it..

“Time seemed to stop”, said her mother Lyndsay.  “We were in so much shock I don’t think we even knew what the tests were for – we thought maybe it was to see if they’d made a mistake”

But tests showed Millie had neuroblastoma, a very aggressive and hard to treat cancer, and she was in the final stages.    Millie immediately began a treatment programme with 80 days of chemotherapy.  Meanwhile her devastated parents began to research the disease, discovering how low their chances were of Millie’s recovery. It was then that they realised that hope may run out for Millie in the UK, leaving them no option but to face treatment abroad and a bill of hundreds of thousands of pounds.

Millie is currently undergoing a programme of treatment and her mother hopes friends, family, the local community and wider public will get behind Millie’s Journey.

“We’re fundraising for the NCCA UK because to date they have enabled

21 children to access the potentially life-saving clinical treatment they need abroad.  They’re also funding ground-breaking neuroblastoma research so that one day children like Millie can be helped here.   Please help Millie and others like her.”

In the event that Millie Rose doesn’t need treatment abroad, all the funds raised for her will go to help other children desperately ill with neuroblastoma.

You can help Millie by donating to the NCCA UK campaign online http://www.justgiving.com/thenccaukmillierosejourney    Or you could hold your own fundraising event.  Find suggestions and ideas on the NCCA UK site at http://www.childrenscancer.org.uk/how-you-can-help/    Or contact Nikki or Claire at the NCCA UK on 020 7284 0800 or email at info@ncca-uk.org

You can also donate by text message – just text MLLE99 and your amount £1 - £10 to 70070

All donations are paid into NCCA UK’s general funds to further its general charitable purposes.  The funds raised by this Journey are not restricted for Millie-Rose’s use.  However, the trustees of NCCA UK have agreed to designate funds raised by this Journey to help Millie-Rose and her family pay for potential future treatment costs and all other associated costs including travel and accommodation.  If Millie-Rose no longer needs the funds, or if the trustees decide, at their absolute discretion, that the funds should be used for a different purpose, they may redesignate all or part of the funds for NCCA UK’s general charitable purposes.  We are very grateful for your charitable donation.  For further information about NCCA UK and how we spend donations, please see our FAQs http://www.ncca-uk.org/faqs