What is Ehlers-Danlos Syndrome?

Ehlers-Danlos syndrome is a group of disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these disorders, which range from mildly loose joints to life-threatening complications. It is a condition which is widely mis-diagnosed and needs a great deal more awareness. 

Why have we chosen to support Ehlers-Danlos Support UK?

Kelly-Lea's Mum was diagnosed with EDS 2010, to date she has had over 75 surgeries as a result of the condition and struggles with physical disabilities everyday so it is a charity close to our hearts.

What do The Ehlers-Danlos Support UK do?

Ehlers-Danlos Support UK improves quality of life for people living with the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorder (HSD). They work across the UK to support, advise and inform those living with EDS or HSD and the medical professionals working with them.