Hi All

Thank you for taking the time to look at my page.

On Sunday 30th May I am taking part in a Guys Tower Abseil at Guys and St Thomas Hospital London SE1,
I am trying to raise £300 for The Jennifer Trust (Spinal Muscular Atrophy)

Standing at over 450ft tall and taller than the London Eye, Guys Tower is a noticeable feature across London‘s skyline.
This is definately a challenge that will leave me with a real sense of achievement, knowing I have managed to achieve my target and also overcome my phobia of heights

I hope that you are able to sponsor me and help The Jennifer Trust, and save the lives of individual affected by Spinal Muscular Atrophy.

Many Thanks
Sasha Liah Smith

T H E J E N N I F E R T R U S T F O R S M A
For 25 years The Jennifer Trust has provided support for families and individuals affected by Spinal Muscular Atrophy, an inherited muscle wasting condition. The most severe form affects babies who usually die before their first birthday – some even within weeks of diagnosis. The impact on their parents and brothers and sisters is enormous. Some children with a slightly less severe form survive into their teens or young adulthood, but have multiple complex physical disabilities that prevent them from walking, some may not be able to sit without support. Sometimes upper body, respiratory and swallowing muscles are affected. SMA does not cause cognitive or intellectual impairment, and children who have the condition are very aware of their situation. Like their peers, they want to go places, have fun, a social life, maybe go to college, as well as manage their condition as effectively as possible. We help them to do this, as well as helping parents with severely ill babies to give them the best possible care during their short lives, and post bereavement support when their baby dies.

Spinal Muscular Atrophy (SMA) is an inherited neuromuscular condition that causes muscle wasting. It causes the motor neurons in an area of the spinal cord called the anterior horn to deteriorate. Motor neurons are nerve cells that send impulses to the muscles telling them to expand or contract. To date there is no effective drug treatment for this disease.

The Jennifer Trust is the only national charity in the UK dedicated to supporting people affected by SMA. Each year around 5000 families, individuals and health care professionals turn to us for information, support and advice about living with, or caring for someone with SMA.