Some of you may already know our story but for those that don’t, here it goes….. 

Normally most people are excited for the 20week scan to find out what gender they will be having but sadly we now know how much more there is to it.

On Friday 7th may 2021 We attended our anomaly scan so excited to see how much our baby has grown, we left in tears and heartbreak as we were told that they think our baby has a heart condition. We tried to stay positive hoping that this was a mistake or that it was something that could be treated. We had our appointment at Great Ormond Street Hospital 3 days later. We met with the fetal heart specialist and  it was then we were told our worst fears when they confirmed the worst possible news. our little baby had a condition known as hyperplastic left heart syndrome, the worst  congenital heart condition we could be faced with. This condition has no cure and the prognosis was very poor.

From then we had many appointments at QEH kings lynn and Norfolk and Norwich Hospital, meeting various people to discuss our options further. None of the options were good options  making this a truly impossible decision to make.

We were told that our baby would need several open heart surgeries, the first at just a couple of days old to stabilise them but it would eventually fail and a transplant would be needed. Due to the likely complications and poor quality of life our child could have, and taking into consideration the effect this would have had on Teddy and Sonny , we were faced with making the most difficult and heart breaking decision we have ever had to make.

Just over a month ago on 20th Of May 2021 at 0027 Rosie was born. She lived for 75 minutes before passing away peacefully in our arms. We got to spend precious time with her over the next day and it was during this time we met this very special person, Theresa. She has given us so much to help remember Rosie by, thinking of not only us, but Teddy and Sonny and our families as well. We will never forget the care and compassion she showed us during this heartbreaking time. 

Theresa gives up her own time to help parents like us and relies solely on charitable donations. On the day Rosie was born she spent several hours with us helping us to make memories and special keepsakes. The work she does continued long after she left the hospital, hours spent editing and making beautiful things to help us  remember and feel close to Rosie. She has always made it clear she is there for us if we ever need to talk or need anything at all.

Covid has hit many charities hard, especially small charities like Theresa’s Tiny Treasures. Unless you have been in the same position as us you may never have heard of her. So we want to try and raise £3000 this year through various events, the first one we are walking up Snowdonia, kids in tow and two weeks later Craig is going to run 100miles through the hills of The North Downs! 

If you have not been unlucky enough to experience loss like we have you might not understand how important her services are to families like us but all we can say is that she has made a huge difference in our lives and we are so grateful. Please give generously. 

Thank you. 

From The Roberts Family Xx

#REMBERINGROSIE

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