Our daughter Olivia was born with spina bifida. This was a total shock as she arrived into the world as this was not picked up on during pregnancy scans. As parents, we were left heart broken and have so many questions and thoughts running through our head. It’s emotional on a daily basis not knowing what the future holds, but it does not change our love for Olivia. We are doing everything we possibly can to keep her comfortable & make sure she is getting the best of the best in every way possible. In the next week she will be admitted to Alder Hey Children’s Hospital and under go an operation to try & fix her spine & put her spinal cord back in place (we are unsure exactly how the operation will go at this moment in time) and that is what we are most nervous about, but we know she is in GREAT hands. We would like our chosen Charity to be Shine, who support children 0-10 with Spina Bifida & their families. They have already welcomed us, sent us lots of information & supported us - which makes us feel more at ease. 

Some words from Shine: 

Shine are working hard to overcome the challenges COVID-19 has brought by stepping in to alleviate the pressure on the NHS and social care system. We're supporting our community of individuals with spina bifida and/or hydrocephalus to ensure they have access to the information they require, and the services they need - now, and in the future. However.... We are almost entirely funded by the generosity of the general public, and without your support, we couldnt continue to be there for you.£5 could pay for... A couple of coffees, OR a new membership pack to help someone learn about their condition.£30 could pay for... A takeaway treat, OR a one hour telephone call with one of our health experts. Shine received over 2000 health related calls last year.£90 could pay for... Your familys travel for a week, OR an advice session with one of our support workers, who last year handled more than 5000 enquiries.Please donate to help us continue providing this life-line of support.