Thanks for taking the time to visit our FordParsons JustGiving page.

In November 2020 our company Director, Rhys Ford, found out that his 5 month old daughter, Ophelia, was diagnosed with an incredibly rare genetic disease, known as Canavan disease. 

Canavan disease is a rare inherited disorder that damages the ability of nerve cells in the brain to send and receive messages. This disease is one of a group of genetic disorders called leukodystrophies. Affected infants appear normal for the first few months of life, but by age 3 to 5 months, problems with development become noticeable. These infants usually do not develop motor skills such as turning over, controlling head movement, and sitting without support. Other common features of this condition include weak muscle tone (hypotonia), an unusually large head size and irritability. Feeding and swallowing difficulties, seizures, and sleep disturbances may also develop.

Currently there are no treatments for Canavan and this is why our chosen charity is very important to us. 

Keech support children with terminal illness and life limiting conditions. They provide medical care & emotional support not only to the child but also the whole family. They provide this care at their hospice in Luton, at families homes, hospitals and also schools. They need over £6 million funding to provide this care and 70% of this comes from events like ours organised by the community.

https://www.keech.org.uk/

I hope you have enjoyed our event and any support would be greatly appreciated. 

Kind regards, 

Rhys & Sam 

Founders of FordParsons