Alport Syndrome is a relatively unknown, rare genetic disease that has severe impacts on all those who's lives are affected by the illness.

This fundraising, organised by Chris Wright, Andy Ferguson, Carl Ward, Anne Wright and James Baddeley, will go towards supporting the patients and families who have to cope with life impacting disabilities, for which there is currently no cure.

Working in partnership with individuals, families and the scientific community, Alport UK:

• Facilitate a support network for patients and families
• Serve as a conduit for high quality, accessible information
• Raise the profile of Alport Syndrome in the scientific community
• Contribute to the international research agenda
• Collaborate on the development of a UK patient registry and alliance of international patient registries