Please Help Raise money for Oskar & The AADC Research Trust

Raising money for Oskar & The AADC Research Trust · 17 October 2014
Pleasesee below for a brief overview of our fundraising events and how you cansupport us! Along with "Oskar's Story" in full (gallery photos).
When Oskar was 9 months old, he was diagnosed withAromatic Amino Acid Decarboxylase Deficiency (AADC). He is one of approximately 200 children worldwide with this disease; some of them have alreadylost the battle.
AADC is a very rare metabolic neurotransmitterdisease which prevents the production of the chemicals Dopamine and Seratonin,two of the brains main neurotransmitters needed for everyday life.This leads to some serious handicaps and an overall feeling of unease andsickness.
Unlike a lot of other AADC-children,Oskar responds well to medication and he is one of the rare children with AADCwho can walk!
Right now, we are raising money for gene therapy, which is a magnificent scientific breakthrough and willgive all AADC sufferers the chance to have a better quality of life. This procedure will replace the missing gene responsible for this debilitating condition.
We – the family and friends of Oskar - appeal to your generous support to help us give these unique and lovely children a chance to a better life!
We are raising money through small events and gaining sponsorship. We also sell cards to support the AADC Trust.
All money raised will go to The AADC Research Trust.
Thank you!
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