Nicolas Cerulus

Nicolas's International Albinism Awareness day 2022: Snowdon challenge

Fundraising for Standing Voice
£293
raised of £1,000 target
International Albinism Awareness day 2022: Snowdon challenge, 12 June 2022
Standing Voice

Verified by JustGiving

RCN 1151250
We run a range of programmes to improve lives for people with albinism.

Story

In support of standing voice for international albinism awareness day, i will be cycling and walking up snowdon, starting from Royal Chester rowing club, as fast as possible with friends supporting the effort throughout!

What is Albinism?

Albinism is a genetic condition where people are born with a deficiency of pigmentation in their skin making them at much higher risk of sun burns. People with albinism usually have much farer skin and hair, while often having associated eye problems such as nystagmus, astigmatism, photophobia and general poor eyesight. 

In sub saharan Africa there are still beliefs going around that people with albinisms are so called "ghosts" and that they have special healing powers causing them to be hunted and marginalised by many small communities.

Standing Voice?

Standing Voice is an international non-governmental organisation based in Tanzania, Malawi and the UK. Founded in 2013, Standing Voice promotes and protects the rights of people with albinism and their families across East Africa. The organisation exists as a catalyst to amplify marginalised voices, enabling individuals to shape their own lives and futures, with programmes in Health, Education, Advocacy, Community Development and Trauma Recovery. 

The event?

This year i will be cycling to, and then walking up Snowdon as fast as possible. This will be done with the support of Friends and teammates from Royal Chester Rowing clubs senior squad. The cycle will 114km followed by a walk of approximately 6-7km to the summit.

Share this story

Help Nicolas Cerulus

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

Standing Voice

Verified by JustGiving

RCN 1151250
In Tanzania people with albinism are being marginalised, mutilated and murdered. In response to this crisis, Standing Voice’s pioneering projects promote the social inclusion and human rights of people with albinism in the country. We defend the innate human need for inclusion and difference.

Donation summary

Total raised
£292.55
+ £22.50 Gift Aid
Online donations
£292.55
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.