Did you know that as many as 1 in 125 babies in the UK are born with a serious heart condition?
We had no idea of this statistic when our beautiful girl Nancy Willow Preston was born at the end of March, until her second day in this crazy world when a heart murmer which was being caused by a hole in the heart was detected after a scan. We were told that as she was so tiny it would probably close on it’s own as she grew and to come back in a few weeks for another scan. Fast forward 5 months and numerous scans and hospital appointments later we are now preparing to take our gorgeous strong girl to Great Ormond street hospital in 3 weeks time for open heart surgery to fix a large hole known as a Ventricular septal defect (VSD). We have been on such a huge emotional rollercoaster so far with the hardest part yet to come and not how we imagined the start of parenthood to be. Over the coming months i’ll be using this page to find ways of raising money for Tiny Tickers ‘the tiny hearts charity’ who are dedicated to the detection and diagnosis of congenital heart disease in babies and offer support and help to families going through what we are at the moment. They have been so helpful especially being able to speak with other parents who have been or are going through the same thing ❤️ I’ll be updating this page once Nancy has had her operation.

Here is a little about Tiny Tickers and what they do. 

A baby is born with a serious heart condition every two hours in the UK and despite congenital heart disease being one of the biggest killers of infants, only around half of congenital heart defects are picked up during routine prenatal scanning. With your help we can provide a safety net for the 1,000 babies each year that leave hospital with their heart defect undetected, increasing detection rates, improving a baby’s chances of survival and long-term quality of life.