Thanks for taking the time to visit my JustGiving page.

My 5 year old son Gregory has recently been diagnosed with Duchenne's Muscular Dystophy. This is a really challenging, muscle wasting condition which effects all the muscles in the body over time. Around 100 boys are born each year in the UK with Duchenne's. This is a genetic condition where the body doesn't produce dystophin, essential for building and repairing muscle. The severity can vary but boys are often in a wheelchair by the age of 10 and life expectancy is in the mid 20's.

Action Duchenne is a fantastic charity which aims to provide support and information to people with the condition and their families. It also funds and supports vital research into looking for treatments for Duchenne's. There is ground-breaking research going on now and this all needs funding, and quickly. There's not a lot of time to wait for these boys. Quality of life and opportunities are also so important for these boys and Action Duchenne also promotes better management and awareness of the condition.

So I'm going to drag myself (and a bike!) around 85 miles of Flanders, which includes lots of the famous "cobbles", on April 2nd 2016. It's not a big deal though but what is, is if you can help by donating to this great charity to help boys like my son have as full as life as possible and yes, help to find ways to treat this devastating condition.

Thanks!

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