Marney Hearn

Marney's Brave the shave

Fundraising for Genetic Alliance UK
£520
raised of £250 target
Brave the shave, 10 December 2020
Genetic Alliance UK

Verified by JustGiving

RCN 1114195
We engage, support, research & campaign to improve policy & healthcare outcomes

Story

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The reason for chosing SWAN UK, is for my son Ben. Ben spent 12 years of his life, being told he was silly, clumsy and pretty much usless and various glib statements from teachers and professionals. They had written him off and expected me to as well, but I wouldnt. I fought for him to be recognised as the wonderful, humerous, inteligent person he is, and to have a diagnosis for his different abilites. When Ben was 12 he was diagnosis under the autism spectrum , it wasa sweeping diagnosis but, at the time I was releaved to have an answer. It helped me feel that he would be understood more by others. Now almost 18 years later we have discovered that my sons differences are genetic. When I was told this I began to do some research and stumbled accross Genetic Alliance UK. I wish I had, had this group of people around to help me when my son was younger

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About the charity

Genetic Alliance UK

Verified by JustGiving

RCN 1114195
We are a national alliance of over 220 charities and patient support groups. Together we advocate and campaign for the 3.5 million people in the UK with a rare, genetic or undiagnosed condition - improving diagnosis, care coordination and treatment options. We run Rare Disease UK and SWAN UK.

Donation summary

Total raised
£520.00
+ £28.75 Gift Aid
Online donations
£520.00
Offline donations
£0.00

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