Lou Lou

Lou's FPIES UK

Fundraising for FPIES UK
£112
raised of £300 target
FPIES UK, 30 October 2020
FPIES UK

Verified by JustGiving

RCN 1159635
We help provide information & give support to those affected by a severe allergy FPIES

Story

Thanks for taking the time to visit my JustGiving page.


What is FPIES?

 

Food Protein-Induced Enterocolitis Syndrome (FPIES) is a type of food allergy affecting the gastrointestinal (GI) tract.  Classic symptoms of FPIES include profound vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be immediate and do not show up on standard allergy tests.  Furthermore, the negative allergy evaluation may delay the diagnosis and take the focus off the causative food.  Nonetheless, FPIES can present with severe symptoms following ingestion of a food trigger.

FPIES Common Symptoms:

There are two ways that infants or children with FPIES might come to medical attention.

  1. The classic pattern of an FPIES reaction is when a healthy infant or child develops symptoms shortly after eating a food. There is a characteristic delay of 2-3 hours before onset of severe and repetitive vomiting and eventually diarrhea.  The child may appear very ill and sleepy (lethargic), and may become pale or blue.  When evaluated by a doctor, he/she may be found to have low blood pressure, seem dehydrated, and have blood tests that mimic infection (sepsis); which in some cases can lead to sepsis-like shock. Many infants who are eventually diagnosed with FPIES are initially suspected to have a severe infection or sepsis.
  2. The second common pattern of FPIES reaction symptoms occurs when infants who are ingesting a problem food (usually milk or soy-based formula or proteins in breast milk) as a consistent part of their diet might experience increasingly severe vomiting, diarrhea, and poor growth, possibly progressing to an illness mimicking a severe total-body infection. Please note that each child is unique and your child may experience their own range and intensity of these symptoms.

FPIES UK is helping to support families and educate others so that children with fpies can be growing up around adults who can keep them safe and understand how fpies affects them. 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Share this story

Help Lou Lou

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

FPIES UK

Verified by JustGiving

RCN 1159635
We provide support and information for families of children with FPIES. It is our vision that by raising funds, we can promote awareness of this rarer non IgE mediated allergy and provide further support to families. Help us to support FPIES children and their families!

Donation summary

Total raised
£112.00
+ £10.50 Gift Aid
Online donations
£112.00
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.