Story
Hello Beautiful friends,
DARE TO BE DIFFERENT is what Luanna has led me to!!! She teaches me to stop the urge to fit in and to breathe as I learn to stand out.
Luanna is a bright and ALIVE little girl ( not so little anymore). Luanna is FULL OF ENERGY ! She loves to play all day long. She loves to sing, dance and CREATE LIFE in general. She is herself!
Luanna is almost 12 years old !!! She was diagnosed with a rare syndrome called Baraitser-winter syndrome that changed the course of our lives quite significantly ... For Better !
Luanna has been teaching us SOUL much in life. As you get to know Luanna, you truly understand the POWER OF NOW . She teaches us all how to be present and how to breathe when things seem out of control.
As part of Luanna's challenges she started having ongoing seizures in the last couple of years and it has been very challenging for us. So many factors to take into account as she is getting closer to become a teenager! However, we managed to find ways to manage it all and we are doing well.
Luckily, financially we are able to help and support Luanna in her journey. However, there are many people with epilepsy that aren't that lucky. So your donation is very important to me.
I have shaved my head on the 14th February as a personal challenge for my own self, and as a way to ask you for help. Raising funds will also help to raise awareness of epilepsy.
Thank you SOUL much for you generosity in helping me to help others in a cause that is so close to my head and heart ! May you be blessed in all areas of your life.
Peace & Happiness Always,
Graham Family, xo
“When we least expect it, life sets us a challenge to test our courage and willingness to change; at such a moment, there is no point in pretending that nothing has happened or in saying that we are not yet ready. The challenge will not wait. Life does not look back.” – Paulo Coelho
BTW- "In memory" of Lulu Land Never Dies explanation :
Luanna is NOT DEAD! But she brings life and "death" on a daily basis to me. By teaching me on a daily basis how to allow my stubborn and inflexible opinions and judgements to "die". Bringing back more life! Living in Lulu Land forever !
Thanks for taking the time to visit my JustGiving page.
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