Loulou's Writing for Adam

Loulou Virgona is raising money for DEBRA Australia
A$602
raised

Writing for Adam · 1 May 2021

PB4EB 2021
Campaign by DEBRA Australia (RCN ABN: 72 704 515 571)
Making a difference is such a feel good thing to do. By joining our tribe in the months of May and June you can make a difference in the lives of all those living with EB by challenging yourself to beat your own PB!

Story

Hi Everyone,

I had never heard of Epidermolysis Bullosa (EB) until my friends Angie and John had their absolutely adorable son Adam. 

Adam is the greatest warrior I know! He has just started school this year and is having a great time. His school days are not always easy: there's blister management, making sure his clothes don't rub against his skin, making sure certain activities aren't too abrasive. So many things that might seem easy and quick, take time.

 Angie and John are the greatest parents around! But even the greatest parents need support. By raising money for EB, we can support the EB Nurse Program that has been such an invaluable support to Angie and John's family and many others. 

To raise money for EB I am going to be writing 500 words a day for the month of May. PB4EB

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Donation summary

Total
A$602.00
Online
A$602.00
Offline
A$0.00

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