Charlotte Williams

Leias Nystagmus Summer Challenge

Fundraising for Nystagmus Network
£195
raised of £20 target
Leia’s Nystagmus Summer Challenge, 20 June 2022
Nystagmus Network

Verified by JustGiving

RCN 1180450
We foster and fund research to improve lives for people with nystagmus.

Story

Monday 20th June  is Nystagmus Awareness Day. This is an extremely important day to us as our beautiful daughter, Leia, has Nystagmus.

Nystagmus is an involuntary rhythmic side-to-side, up and down or circular motion of the eyes that occurs with a variety of conditions.

Everyday we learn something about how Leia sees things, which is fascinating. And let’s be honest, don’t we all see things differently.

She embraces life and experiences, like every other child does. We see hurdles as challenges and have always taught Leia to believe ‘I can do anything if I try’.

Honesty is so important for Leia. If she can’t do something or see something she just says. Don’t always assume someone can see or access something. 

Leia  has set herself a challenge to learn to ride her bike without stabilisers and improve her reading skills by the time she starts Year 2 in September. 

Thankyou for listening and we would be incredibly grateful if you could donate to help reach Leia’s target of £20. 

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About the charity

Nystagmus Network

Verified by JustGiving

RCN 1180450
Nystagmus means involuntary movements of the eye. It impairs vision, affecting focus and depth perception. At least 1 in 1,000 babies are born with nystagmus. There is currently no cure. The Nystagmus Network is a UK registered charity which provides support, raises awareness and funds research.

Donation summary

Total raised
£195.00
Online donations
£195.00
Offline donations
£0.00

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