Story
I am taking part in the Marathon in May fundraising event for SMA UK throughout the month of May to help support the charity's vital work in providing information and support to families affected by SMA and advocating for access to treatment.
This charity provided invaluable help to my family when our son Mark was diagnosed in January 2012. The assistance helped us make the most of our short time with our beautiful boy from advice to toy packs, car seats and after he passed away the avenues for emotional support and the opportunity to remember him through inspiration funds. Mark died in March 2012 , 9 months old, life hasn’t been the same since. We live a new ‘normal’ life with a different outtake on things. It’s sad, it’s happy, it’s ....different.
Marks mum, dad, brother , big gran, aunties and uncles are all taking part. Any donation helps to keep them moving . Thank you everyone for remembering him and for your £’s ❤️
Caroline (auntie)
David (uncle)
Mary and John (big gran and big grandad)
Nathan (brother)
Tracy (auntie)
Susan and David (little gran and little grandad)
Scott (uncle)
Louise (auntie)
Grace, Zoe and Beth (cousins)
2009 Cumbernauld Pumas
Our lovely friends the Merricks
The Coronavirus pandemic is affecting so many people, businesses, charities. This is a small charity and we want to help.
Your donation will help the charity to continue to work with the SMA community by providing information and outreach services, funding research, advocating for access to treatments and organising social events.Thank you for your support!