Kerri Ewan

Kerri Ewan

Fundraising for PoTS UK
£1,151
raised of £200 target
Event: Manchester Marathon 2022, on 16 April 2023
PoTS UK

Verified by JustGiving

RCN 1159813
We educate, support and raise awareness to improve the lives of those with PoTS.

Story

February 2022 - Postponed due to health & safety reasons - Because of my own health issues (eye roll) & being told not to run until I have an echocardiogram, I cannot train, which means I cannot take part in the Manchester marathon. I am absolutely devastated, this is the second time I have trained for this damn race, getting up to both 20 & 15 miles. But I will not be beaten & hopefully I will be able to take part in another marathon, or some challenge this year! Unfortunately, the page cannot be altered so will still state 'Manchester marathon' (just to rub it in) but I have kept it open beyond this date. Here's to a new beginnings & better things ahead 💜

Many of you know Grace has been poorly for a few years, but in particular these last 11 months she’s rapidly deteriorated, using a wheelchair & cannot go to college due to ill health. She’s been diagnosed with PoTs. Which sounds simple but it isn’t, & likened to someone with heart failure/COPD. It’s not curable & has multiple syndromes/comorbidties. No one knows why, or how it happens & patients/carers/parents rifle relentlessly through information, trying to get help, begging for help, which is practically non existent. The PoTs UK website is a lifeline for those effected. The information they have provided has been so helpful to us as a family. So, I wanted to both raise money & awareness by running another marathon. Simple you might say, but it’s going to be hard, as I don’t seem to be able to stay upright, both fracturing a rib & my nose within a year of each other, I’m having trouble running a bath never mind 26.2 miles! I’m also juggling work, numerous hospital appointments, some of which are in London & caring for Grace, who cannot be left alone due to collapses including some seizures. Grace is one of the strongest people I know, suffering everyday, taking multiple medications, but she never moans, although I make up for the both of us! Please spare a few quid for this wonderful charity. 

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About the charity

PoTS UK

Verified by JustGiving

RCN 1159813
PoTS UK was founded by a group of healthcare professionals with PoTS who recognised the need to increase awareness of this condition. We are passionate about educating and supporting patients, family, friends and medical professionals about this widely unrecognised and misdiagnosed condition. We do this by sharing up to date evidence and resources. We also work with healthcare professionals and other charities in the UK and abroad, and advocate for our members by seeking better NHS services, more research, and targeted treatments for people with PoTS.

Donation summary

Total raised
£1,150.06
+ £229.00 Gift Aid
Online donations
£1,150.06
Offline donations
£0.00

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