Thanks for taking the time to visit my JustGiving page, I really appreciate that you have taken the time to do so.

Nearly 14 years ago, our best friends were given the devastating news that their baby son was diagnosed with the neurodegenerative disease Niemann Pick Type C. 

In their own words:

“After his diagnosis, our world fell apart. NP-UK was there from the beginning helping us begin to make sense of everything, signposting us to the right people and information. And keeping us going when doing so felt impossible. They’ve done the same for countless other families and have built a community which makes living with a rare illness, not quite so lonely.”

NP-UK is an incredibly small charity that helps families navigate that impossible path. It provides support through the tough times but also unites families and celebrates life. Small charities like this rely on the little people like us to share awareness. Quite simply, every penny counts.

Thank you so much for your time.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.